Wednesday, June 30, 2010

Here We Go Again

Sometimes I feel so selfish. So narcissistic. Here I go again! I am asking you all today to keep me in your thoughts.

Its that time again. Somehow, 3 months has gone by. They have gone by quickly in a blur of tests and schedules, pain and determination. I am only just now getting a handle on things, and yet today I am again forced to buckle in and I can feel the roller coaster chugging toward that huge, imposing ascent. I am screaming, "No not yet. I'm not ready yet!" I have just in the past two weeks gotten a handle on my life now with the latest diagnosis. I have just these past two weeks felt well enough to get back out there into this thing called life. I have just now been brave enough to make plans. I have felt strong enough emotionally to begin calling my wider circle of friends and act normally. I have only now begun to delude myself, "Maybe I'm not sick. Maybe I'm being too dramatic. I bet I'm going to live a really long time and all of this will seem like some immature mountain that I made out of a molehill when I was 26."

But now it's scan time. There is no getting around it. This afternoon, I go to see my doctor to get the results. The guillotine is sharp and glistening in the sun. A crowd has gathered. I just have to climb the steps and learn my fate. Are the drugs working? Has anything grown? Can I stay on the trial?

And then, I let my imagination wander even further, maybe the drugs have worked so well all of those teeny tiny scary cancer spots that we have been watching nervously for years, they are scattered all throughout my body, maybe we have found the silver bullet drug that I hoped for. Maybe they have all disappeared??

Or I could be stuck today somewhere in the middle. In no man's land, which is also so very hard to overcome. No change. The cancer has not grown, so let's assume the drugs are working, but we have no evidence. There is some tempered celebration, but the dreaded spots are still there.

I have been anxiously awaiting a phone call all week. I have been riding this roller coaster long enough now to know the drill. If the results were very bad, like life threatening bad, the doctor always calls. She always calls on her cell phone in the evening when she gets home. Not because she didn't find time during the day to deliver the bad news but because that way she has all the time in the world to answer any of my questions. I love her!

My witching hour is sometime between the hours of 6pm and 8pm. I have had twenty scans in the past five years. Of those twenty, six have come back badly. I have still had more good news or in between news than I have had bad news. I like to think that is a sign of me winning. Yet, six bad phone calls is enough for you to notice a pattern.

She calls my cell between 6pm and 8pm from a blocked phone number. So all week I have been on lock down. If Mamma calls or one of my girls calls, I angrily hit ignore (sorry gals!) I am as single minded and focused on my cell phone as a young teenage girl waiting for that return call from her date, except without any butterflies of excitement.

On Monday, the poor Salvation Army man made the mistake of calling my cell phone at 6:15pm to remind me of the pick up of some donations on Tuesday. I almost took his head off. Poor man! None of this is his fault! Then Comcast made the mistake of calling to let me know they changed their name to Xfinity. My service is excellent and the cost is reasonable, but that errant phone call alone was enough to make me want to change my provider!

So far so good, no midnight phone calls and we are trying to deal here at the Big Man and Big Pant household.

How do we deal? Basically, we make plans and spend money on the future. The sensible thing to do this upcoming holiday weekend would be to stay close to home. We live in Boston for goodness sake, there are some fabulous Fourth of July festivities right here in our back yard! But no! Not the Big Family! Instead, we satiate our anxiety by plunking down some cash (that we don't have!).

This weekend, we are going to take a road trip to New Hampshire. To the Mount Washington Resort to be exact. A non-refundable hotel package. We decided this over the weekend as I was having a meltdown in the kitchen. The Big Man said it first, "We need to get out of here."

He's right. I don't care what happens this week, or where I have to be, or what huge, life altering decisions I have to make. We're getting the heck out of dodge. We are going to hike to high peaks and stare out into the sunset and ponder life's great mysteries. We are going to work up a sweat on the tennis court. Then, we are going to get a couple's massage. And, of course, there will be fireworks.

So I must take a deep breath this morning and know that everything will be fine. No matter the results today, life goes on. Life is beautiful and I have a beautiful partner, and no huge news will change that. Our holiday weekend may be a celebration of my cancer butt-kicking skills. We could be giddy with excitement and all of the potential for our wide open future. Or this trip may be just the vacation we need to steel ourselves for that next chapter in this journey.

Whatever this turns out to be, for right now, I'm nervous as hell and would appreciate all of you lifting me up in your thoughts. Thank you for reading and thank you for caring. This moment really is what my blog is all about. A place where I can remind everyone all at the same time, while you're headed to work today, I'm headed to my own personal guillotine. Wish me luck!

11 comments:

Laura H. said...

As always, you'll be in my prayers and I'll be sending you positive energy and love.
~Laura

Jill said...

I hope you really enjoy your weekend. My theory is that we live life to the fullest.
I am also sending positive thoughts your way:)

Anonymous said...

I am sending you healing and peaceful thoughts))))))))))))))))
I hope you have a fabulous weekend and that it turns out to be a terrific celebration of your cancer "butt-kicking" skills. You deserve tons of good news from now on.
~Patty

Jenny said...

I love that photo of you overlooking the hilly scenery. Perfect balance of reflection and hope... just like you! xoxo

Jennifer Rosenberg said...

Bridget-

You are always in my thoughts but will make sure they are more focused this evening. Sending you love and hugs,

Jennifer

Liliana said...

Bridget,
I have been checking your blog every day. I was so glad to see that you had written today. Best of luck to you. I am holding you in my heart. I wish you all the luck this world has to offer.
And enjoy your weekend with your sweet husband. Gain strength for the future. You can do it, girl.

Molly is Fast said...

you will be right in my backyard. i grew up about 20 minutes away from the mt. wash and spent one 4th of july at the hotel. you'll love it. and there are all these rumors about ghosts and stuff in the hotel. you know, if you're into that kinda thing. also, my friend's husband is the head chef. have such a great time.

Peggy said...

Bridget- lots of love to you from us. We are pulling for you and the Big Man. Just knwo you're in our thoughts. xoxo

Kristen said...

Positive energy and love your way.

Have you seen this article from the New York Times? It's about long-term stage 4 cancer survivors.

http://www.nytimes.com/2010/04/27/health/27case.html

Love and light to you!

Anonymous said...

Bridget....Enjoy this weekend,hang tight to your hubby and all those good thoughts we are all sending you....if you need us just put your hand on your heart and you will feel all of us right there with you.....Sheila V.

Anonymous said...

It'll be ok!! Good zen rainbow sunshine thoughts going your way!