Showing posts with label Cancer-versary. Show all posts
Showing posts with label Cancer-versary. Show all posts

Tuesday, June 7, 2011

OPP....Other People's Problems

It is hard to believe that we are already on our way into summer. I'm excited to share with all of you the news that my summer is shaping up to be my best summer in two years!

Why you may ask?

Well, as you all certainly know by now, my every happiness hinges on....

Scans!

Last week I received my latest scan results. These particular scan results were crucial as it was my first set of scans since starting the latest Tykerb/Xeloda regimen way back in January. And... 

my cancer has shrunk!

As a refresher, back in January I got the worst Christmas present ever, the cancer equivalent of a bag full of coal. I was told that scans had shown new cancer in the lymph nodes in my abdomen. Well fast forward 6 months and those very same pesky spots in my abdominal lymph nodes were cut in half by my Tykerb/Xeloda!!


 Gratuitous Big Man and Little Daisy Shot
Everyone raise a glass to Daisy's Mommy!

These past six months have been mentally tough because I've been struggling with the new drug side effects while also not even knowing if the drugs were working!  Over the past few months, the blood work I would get regularly was showing conflicting news. One week the tumor markers in my blood work would go down, the next they would go back up, the following week one tumor marker would go down and another go up. Until scan time, I was really driving blind. These were difficult pills to swallow not knowing their efficacy! (pun intended)

Now that I know these drugs will work for me, I can more graciously and confidently endure any and all side effects. Bring it on! I can handle it with a smile!

But more importantly, with this fantastic news, I am set free. I am finally able to focus on what matters most in this world- other people. The Bridget Show has taken a hiatus.There are so many beautiful things happening to my friends and family: marriages, babies, houses, jobs. There are also so many tragedies that I'm hearing about. There is so much cancer in this world. Others need my attention now while I can spare it.

 I am sick and tired of the Bridget Show. For six years now I've been hogging the spotlight. I've been taking away some of the joy from so many joyous occasions. My friends feel sometimes that they can't complain to me about the trials of their own lives since I have "The Big C" on my plate. In reality, I would give any amount of money to NOT be the center of attention and to lose myself in the stories of others.

These past few weeks have been glorious. I feel as though I've come out of hiding. For the first time in ages I am planning ahead. I am planning life. Things many of you might take for granted seem so brave and liberating for me, like the freedom to book a non-refundable flight to visit Mommy four months from now.

I'm calling friends in high and low places and making plans for visits. I am gossiping, offering advice, listening, and truly being able to listen. My mind is not elsewhere. I am not preoccupied with my own fears.

To that end, I have taken the big scary step of beginning that memoir I've always threatened. I have 50 pages now and I love where it's going. Writing this blog is so very different from taking all of you along on a journey through my past, encouraging the reader to feel what I feel, taste what I taste, see what I see. This blog skims the surface. I share news and thoughts with you. In my memoir, I want you to actually sit in the doctor's waiting room with me.  It's different writing and it's difficult emotionally to write, but it is exhiliarating. I realize now I never could have gotten these words on the page, I never could have looked back at the pain of my many diagnoses if all of my energy was focused on the latest set of bad news. This tiny little scan, the words "stable" have set me free. I can't wait to reach my full potential!

To kick off my memoir writing, I enrolled in a memoir writing class at night after work once a week. That class has again opened my eyes to the joys of hearing other people's stories. The woman fighting brain tumors, families with dirty little secrets, thrilling travel-logues, every one of my classmates is more eloquent than the next and every one has a story to tell. Each week we share 10 or 20 pages of our work and we offer critique. We tell our colleagues to "dig deeper here", or "I love this character", "hurry up", "slow down" - it is a beautiful creative experience.

At this class, I have learned yet again the lifelong lesson that every one has a story. Every one of us has a burden that she must carry, and so many of us carry these burdens silently. We put on a wig. We take the cell phone call from our sick mother from a bathroom stall. We tell little white lies to our children. We come to work everyday when life at home is imploding.

 I want to carry that knowledge with me everyday in every interaction, and I hope you will keep that in your minds as well. Give the bagger at the grocery store an extra smile, allow the car at the stop sign to turn in front of you, hold the door open, choose your words carefully in every interaction, don't let your hot head or busy schedule cause you to raise your voice or cut corners, because you never know what sort of news the person next to you received today.

I am so thrilled to finally have the wherewithal to listen. Over the years, cancer has turned my heart to stone. My mind and my heart have been slowly numbed over the years. It happened gradually. As cancer dealt me blow, after blow, after blow, I retreated further and further into my own brain and into my own close circle of family and friends. I had room for their feelings and needs, but couldn't quite open myself up to sharing in strangers' pain and stories. If I felt all of your pain while also dealing with my own tragedy, I wouldn't be able to go on. The cold hard reality of life would be too much to bear. These scans have thawed me out and freed me a bit from that prison of my own mind, my own fears and worries.

At my writing workshop, I've seen firsthand that the whole world has been built on sharing stories. The greatest stories of all time, from Hercules to Robin Hood, even all of Shakespeare's great works, were all passed down orally over generations. A story shared can create an overnight sensation in a community, or it can ruin someone in an instant.

This summer I will, of course, still share my journey when it is appropriate or necessary, but I'm done complaining about my side effects for the rest of this summer. This summer, these next few months in between scans are a gift. I want to take advantage of this time to turn my focus outward. I want to share other stories of survival.

I don't need to celebrate this scan with wine and an expensive dinner, or an extravagent purchase. I can celebrate this win in my own fight by focusing on and shining a light upon the plight of my friends and neighbors. After all:

"What we have done for ourselves alone dies with us; what we have done for others and the world remains and is immortal.  ~Albert Pike"

Friday, June 4, 2010

Milestones

TGIF! Today is a huge day for me. Well, actually, yesterday was a huge day for me, but the Big Man and I plan on celebrating tonight. He is taking me to see "The Great American Trailer Park Musical." I don't know what to expect, but whatever it is it sounds fabulous!

No, it is not my birthday. No, it is not my wedding anniversary. No, we did not get that puppy I want, although Big Man, if you're reading this, if you come home with a puppy tonight then you will automatically win every argument for the next five years!

Today is my "Cancer-versary". It has officially been five years since my breast cancer diagnosis! I am entering my sixth year of survivorship today! I am now officially on the winning side of that 20% statistic that I think about every second of every day. My goodness, gracious how far I have come in the past five years! I get a little bit shaky just thinking about where I was on June 3, 2005.

I was standing in line at Starbucks. I had graduated two weeks before.  I was bright eyed and bushy tailed. The greatest worry that I had was what to wear to my first day of work. I had just spent some time shopping on Newbury Street for cute shirts to go under my boring black suit jacket. I needed a coffee because I had been sadly unsuccessful.

Everything I tried on suddenly seemed so "juvenile". I suddenly felt the urge to shop at Anne Taylor or Talbots. I bought my first ever pair of shoes from Naturalizer. In college, I had never left hip, cafe-and boutique-filled Newbury Street, but post-college, I had the urge to drive out to visit a large suburban mall.

I hoped that ordering a skinny, double-shot caramel macchiato might wake me up from this real world induced fashion coma.

That is a long winded way of saying, I was a totally typical college student. I did not have a care in the world, but if you asked me I am sure I would say that I was suffering some sort of major crisis.





My phone rang. It was my mother.

Momma asked me where I was. I told her Starbucks. Without taking a breath, I started into my big thoughts on the joys of sensible Naturalizer pumps. She clearly wasn't listening. Whatever she had on her mind she was going to say and there was no stopping her.  She interrupted my Naturalizer monologue. She never told me, "Honey, you should probably sit down" or "Why don't you call me back when you get home", or even, "Go into the bathroom where it is quiet and you can talk privately."

No, no. Instead, while standing in line at Starbucks behind a young mother with a MacLaren stroller and several Burberry and Petit Bateau shopping bags, my mother told me I had breast cancer.

I hung up on her saying, "Listen, I just can't deal with this right now."

Now, five years later, I can deal with absolutely anything and everything.

This time five years ago, I was in my brand new Volkswagen Jetta, a graduation gift from my proud parents, driving eight hours home from Boston to Baltimore with my mom. I had, for some reason, packed only three outfits and a bathing suit. Who knows why I thought I needed a bathing suit for chemo. I had quit my first job before I had even started and instead of living with my best girlfriends, I was in the process of moving back in with my parents.

On the long, Batan Death March that was my ride to chemo, I was having a conversation with my oldest brother about why I should or should not tell my college friends about my diagnosis.

"Bridge, this whole cancer thing is going to be really quick. Just get this chapter behind you, and you'll want to go back to normal. If you tell everyone, you'll never be able to go back to normal. Bump in the road, Bridge, bump in the road."

"Dude, Bro, I'm going to lose my hair. How am I going to explain that one?"

Silence.

And just like that, my life was forever changed. Now, I tell my story to anyone who will listen.

Five years ago, my boyfriend of six months came to my parent's home for only the second time. He held my hand as my mother's hairdresser shaved my head.  Here I am sporting my new look next to my dubious younger brother.



Five years ago, the GI Jane look worked for a bit, but then my hair started actually falling out. It came out in big chunks. The Big Man actually left a hand print on the back of my head after watching a movie at one point. The Big Man was both mortified and feeling incredibly guilty. So I quickly invested in an amazing wig.



Looks like I got the soccer mom look I had been hoping for on Newbury Street!

Now, five years later, that brave young man who held my hand as I shaved my head is now my husband and my hair is long and fabulous.





The past five years have been a long and painful few years. Nothing has gone as I expected, but the greatest lessons of my young but eventful life haven't been learned in the college classroom; they were learned in the hospital room. So here is what I have learned up to this point. These thoughts are the legacy from my first five years:

Your parents are your best friends. Contrary to what many of you might imagine, they will not be here forever and their presence in your lives is a gift. Let go of any petty drama or family arguments. If caring for your ailing mother is grating on your last nerve, when you have the knee jerk reaction to speak sharply or get exasperated, instead take a deep breath and give a hug instead. Your parents are the only people on this earth who know you better than you know yourselves.
The best thing that ever happened me was moving in with my parents after graduation. I did not just live upstairs. I cooked dinner with them every night, my dad and I went on dates, I got to know my mom as a friend and not a mother. I learned about their first jobs and their graduate school experiences. I learned to turn to them for good and sound advice, and to actually listen to their advice rather than thinking I know it all. We became the best friends we always should have been for the first 21 years of my life because we found ourselves in the unhappy position where we were all clinging to each other like survivors to a life raft. Please, do me a favor and become best friends with your parents simply because you are lucky enough to realize how precious they are!
I’ve also learned to stop spending my time trying to plan my whole life and setting certain goals to attain. Do not measure yourself based on the accomplishments of your peers. Life is too short to wish it away.  Reflect on all that you have accomplished as opposed to planning for the next accomplishment. Focus on tonight rather than planning for tomorrow. Turn off your phone, computer, tv.....Instead, let go and enjoy where you are in this very special moment. I know I will really enjoy "The Great American Trailer Park Musical" this evening. What are you doing tonight? Whatever it is, put your heart and soul into it!
 When I visited a doctor and he ran his hands through his hair and said, “I just don’t know what to do with you.” At that moment, I was forced to take stock of my life.
I task all of you to spend some time today, in my honor, taking stock of your lives. Don’t take stock of your career goals or material possessions. Take a look at your character and at your relationships.  Take a look at the friends around you, because at the end of your lives, your relationships are what endure even after you are gone. Your relationships and your character are what matter and they are all that matter.

I have spent the past five years intensely focused on the relationships with the people I love. It has been the best five years of my life. I am looking forward to the next five.