Showing posts with label cancer. Show all posts
Showing posts with label cancer. Show all posts

Tuesday, June 7, 2011

OPP....Other People's Problems

It is hard to believe that we are already on our way into summer. I'm excited to share with all of you the news that my summer is shaping up to be my best summer in two years!

Why you may ask?

Well, as you all certainly know by now, my every happiness hinges on....

Scans!

Last week I received my latest scan results. These particular scan results were crucial as it was my first set of scans since starting the latest Tykerb/Xeloda regimen way back in January. And... 

my cancer has shrunk!

As a refresher, back in January I got the worst Christmas present ever, the cancer equivalent of a bag full of coal. I was told that scans had shown new cancer in the lymph nodes in my abdomen. Well fast forward 6 months and those very same pesky spots in my abdominal lymph nodes were cut in half by my Tykerb/Xeloda!!


 Gratuitous Big Man and Little Daisy Shot
Everyone raise a glass to Daisy's Mommy!

These past six months have been mentally tough because I've been struggling with the new drug side effects while also not even knowing if the drugs were working!  Over the past few months, the blood work I would get regularly was showing conflicting news. One week the tumor markers in my blood work would go down, the next they would go back up, the following week one tumor marker would go down and another go up. Until scan time, I was really driving blind. These were difficult pills to swallow not knowing their efficacy! (pun intended)

Now that I know these drugs will work for me, I can more graciously and confidently endure any and all side effects. Bring it on! I can handle it with a smile!

But more importantly, with this fantastic news, I am set free. I am finally able to focus on what matters most in this world- other people. The Bridget Show has taken a hiatus.There are so many beautiful things happening to my friends and family: marriages, babies, houses, jobs. There are also so many tragedies that I'm hearing about. There is so much cancer in this world. Others need my attention now while I can spare it.

 I am sick and tired of the Bridget Show. For six years now I've been hogging the spotlight. I've been taking away some of the joy from so many joyous occasions. My friends feel sometimes that they can't complain to me about the trials of their own lives since I have "The Big C" on my plate. In reality, I would give any amount of money to NOT be the center of attention and to lose myself in the stories of others.

These past few weeks have been glorious. I feel as though I've come out of hiding. For the first time in ages I am planning ahead. I am planning life. Things many of you might take for granted seem so brave and liberating for me, like the freedom to book a non-refundable flight to visit Mommy four months from now.

I'm calling friends in high and low places and making plans for visits. I am gossiping, offering advice, listening, and truly being able to listen. My mind is not elsewhere. I am not preoccupied with my own fears.

To that end, I have taken the big scary step of beginning that memoir I've always threatened. I have 50 pages now and I love where it's going. Writing this blog is so very different from taking all of you along on a journey through my past, encouraging the reader to feel what I feel, taste what I taste, see what I see. This blog skims the surface. I share news and thoughts with you. In my memoir, I want you to actually sit in the doctor's waiting room with me.  It's different writing and it's difficult emotionally to write, but it is exhiliarating. I realize now I never could have gotten these words on the page, I never could have looked back at the pain of my many diagnoses if all of my energy was focused on the latest set of bad news. This tiny little scan, the words "stable" have set me free. I can't wait to reach my full potential!

To kick off my memoir writing, I enrolled in a memoir writing class at night after work once a week. That class has again opened my eyes to the joys of hearing other people's stories. The woman fighting brain tumors, families with dirty little secrets, thrilling travel-logues, every one of my classmates is more eloquent than the next and every one has a story to tell. Each week we share 10 or 20 pages of our work and we offer critique. We tell our colleagues to "dig deeper here", or "I love this character", "hurry up", "slow down" - it is a beautiful creative experience.

At this class, I have learned yet again the lifelong lesson that every one has a story. Every one of us has a burden that she must carry, and so many of us carry these burdens silently. We put on a wig. We take the cell phone call from our sick mother from a bathroom stall. We tell little white lies to our children. We come to work everyday when life at home is imploding.

 I want to carry that knowledge with me everyday in every interaction, and I hope you will keep that in your minds as well. Give the bagger at the grocery store an extra smile, allow the car at the stop sign to turn in front of you, hold the door open, choose your words carefully in every interaction, don't let your hot head or busy schedule cause you to raise your voice or cut corners, because you never know what sort of news the person next to you received today.

I am so thrilled to finally have the wherewithal to listen. Over the years, cancer has turned my heart to stone. My mind and my heart have been slowly numbed over the years. It happened gradually. As cancer dealt me blow, after blow, after blow, I retreated further and further into my own brain and into my own close circle of family and friends. I had room for their feelings and needs, but couldn't quite open myself up to sharing in strangers' pain and stories. If I felt all of your pain while also dealing with my own tragedy, I wouldn't be able to go on. The cold hard reality of life would be too much to bear. These scans have thawed me out and freed me a bit from that prison of my own mind, my own fears and worries.

At my writing workshop, I've seen firsthand that the whole world has been built on sharing stories. The greatest stories of all time, from Hercules to Robin Hood, even all of Shakespeare's great works, were all passed down orally over generations. A story shared can create an overnight sensation in a community, or it can ruin someone in an instant.

This summer I will, of course, still share my journey when it is appropriate or necessary, but I'm done complaining about my side effects for the rest of this summer. This summer, these next few months in between scans are a gift. I want to take advantage of this time to turn my focus outward. I want to share other stories of survival.

I don't need to celebrate this scan with wine and an expensive dinner, or an extravagent purchase. I can celebrate this win in my own fight by focusing on and shining a light upon the plight of my friends and neighbors. After all:

"What we have done for ourselves alone dies with us; what we have done for others and the world remains and is immortal.  ~Albert Pike"

Friday, March 25, 2011

This is not your fault

I know I often put on a brave face here on this blog, but I'm going to be honest for a moment. This Xeloda and Tykerb drug combo is no joke, my friends. I am struggling these days with feeling old - much older than my 27 years. My Xeloda- Tykerb combo is doing some serious damage to my feet. There is nothing quite like literally hobbling around the house to make one feel like a 90 year-old.

Every girl will agree, a great pair of pumps can make even the most tired girl stand taller, look thinner, and feel beautiful. Sadly, I can't even get my aching, throbbing, red, peeling feet into a pair of flats let alone a pair of pumps! I've taken to watching E! news obsessively for hours. I stare enviously at the beautiful starlets in Christian Louboutins on the red carpet. You never see Angelina Jolie hobbling, or wincing in pain, or even stumbling in her heels. I want to throw my slippers at the tv when the latest hot young thing from Hollywood says "Oh yes, I'm wearing Dior and Jimmy Choo!" You know what? I'm wearing Target Fuzzy Socks, thank you very much.

I think I might buy myself a pair of fabulous pumps as motivation for getting better. How much is too much to spend on shoes? Anyone have a pair of Jimmy Choos they want to lend me? I promise I won't actually wear them, I can't actually wear them, but I will put them in front of my bathroom mirror for a daily dose of motivation. I want to get my old acne-free, pump-wearing self back. Like an alcoholic going to sit in a bar on a Friday night, or a woman on a diet heading to the ice cream store, my nightly dates with E! news are not healthy. Looking at The Beautiful People only makes me feel older. Even though the weather is getting more springlike, I'm still a slave to my very unfashionable UGGs; the sheepskin interior is heaven for my peeling feet. Oh, the joys of breast cancer! Thank you, breast cancer, for making me feel like a slob.

The drug insert that comes with my chemo pills mentions this side effect. They gave it a medical name to make it sound more tame and manageable. They call it "hand/foot syndrome." I haven't yet hit the "hand" part of the syndrome, thank god, but the fire in my feet is making me feel "elderly".

For six years of this battle, I have managed to keep my self-esteem up. I always felt like a young lady. I always felt my age and rarely had self-esteem issues. Even after losing both my breasts and my hair, I always had my spunk, but these past two months have been hard. Between the acne-rash on my face and these burning feet, I fear I am losing my sense of self. Remember that I am a walker. I walk the Susan G. Komen 3-Day for the Cure every year. I also coach other 3-Day walkers and help motivate them to walk 60 miles. I walked 120 miles in back-to-back events, just three days after getting out of the chemo chair. I may not be able to run around the block, but walking was something I was always able to do. It gave me hope. It empowered me in the midst of my treatment. I love walking. What will I do if I can not walk?

From a practical perspective, we live in the city and I walk everywhere: to the library, to church, to the coffee shop, to the grocery store, to the theater, out to dinner. You don't want to move your car in downtown Boston if you can help it! Now, I can't walk from my bed to the kitchen without pain.

This venting of my Xeloda frustrations was going to serve as a very selfish blog post, but last night, as I was folding laundry and Big Man was grading his students' essays, the old husband gave me another topic to discuss. I tried to stand on my tip toes to reach the fabric softener that is stored in a cute little basket on top of our machines. This is an action I have taken millions of times before without even noting it or thinking of it. This time though, the fire in my feet wouldn't let me accomplish my task. Cancer intervened. I couldn't reach. My toes screamed in pain every time they touched the ground.

I asked the Big Man for help and he did what husbands do everyday...he criticized. He expressed an opinion. An unkind, unsolicited opinion. The very worst kind of opinion: a husband's opinion.

The Big Man asked me in a frustrated voice, "Bridget, have you even been USING that Burt's Bees foot cream?"

Yes, as a matter of fact, I have been, thankyouverymuch. I cover my feet and I put them in socks every morning and every night before bed. The smell of the" healing" coconut oil follows me everywhere I go.

I told him as much and Big Jerk replied, "Well, have you been re-applying? I mean, clearly, you haven't been putting it on often enough. You know, you can't just put it on once and expect it to make a difference."

I'm not trying to throw Big Man under the bus here. Well OK, maybe I am, but more than that, I'm trying to make a universal point by sharing this story. The implication that I might be doing something wrong, that I was doing something to cause this pain in my feet, that this side effect was somehow under my control. Well, that implication made me want to throw the fabric softener bottle, open, right into Big Man's handsome, smug face.

Nothing I can do will make this hand-foot syndrome better. The creams I am putting on will help me to cope, but only going off the drug will heal me completely, and going off these drugs is not an option for me right now. Nothing I did caused the hand and foot syndrome. The drugs caused this. I have learned throughout this cancer journey that I will do my very best, anything less is unacceptable, but I will not beat myself up or feel like a failure for being unable to walk to the kitchen. I'm feeling so sick these days that I'm going to be generous and gentle with myself.

My point is: Remember, people, guilt will get you nowhere. None of this is your fault. Let that thought go. Fight that.

That has been the hardest thought to get out of my head since the moment I was diagnosed. My very first thought was, and still is, "What did I do to deserve this? How could I have prevented this? What do I need to do to fix this?"

I put my UGG boots on earlier this week and hobbled my way to the Boston Public Library to pick up the book The Emperor of Maladies. It talks about why cancer is so darn difficult to cure. Cancer is truly the Emperor, the King, of all illnesses. Did you know breast cancer was first mentioned in ancient Egyptian times? And do you know what they did in ancient Egypt to "cure" breast cancer? Well, they cut off the breast and they treated with a potion of herbs.


We've come a long way, baby! That doesn't sound anything at all like what I'm doing!

My point is, cancer is insanely complicated. We need to respect that and to give ourselves a well-deserved break. After decades of research, we are still unable to find the cause, the smoking gun. Instead of a smoking gun situation, cancer develops in a Murphy's Law type of environment. You may have had a genetic predisposition for developing cancer, but that alone is not a cause. You had something in your body that made you prone to it and then Murphy's Law kicked in. You were exposed to something in your environment, or your immune system was compromised, and your body lost its ability to keep the Stage 0 cancer at bay. Somehow, somewhere, something happened that turned those benign, pre-cancerous things into cancer, but that alone was not a cause. It was an unlucky coincidence, a tragic confluence of events. If you had always exercised and followed a vegan diet, you might have decreased your chances of developing cancer, you might have minimized your risk, but the cancer might have developed anyway.

There is no single moment in time that we can point to and say, "That right there, that did it."

So let that question go. Let the guilt go.

You did not cause your cancer.

The side effects of the drugs you are taking are not your fault.
Don't apologize as you lay across the toilet for the inconvenience that you are causing your family.

Don't play into the Big Man's blame game. He is only expressing his own frustration and sadness.

By all means, do your best in this fight. Bring your A Game. Do all that you can, but stop beating yourself up about this. Eat well, not because you want to cure your cancer or because you think that eating well is going to keep you safe from all the scary things that life throws at you. Eat well because eating well makes you feel better. Exercise because it makes you feel good. Slow down and stop stressing because that is a good thing to do.

When I was first diagnosed, I started eating tons of fish. I stopped drinking. I cut out caffeine. I drove my poor father crazy. He turned to my mother after one particularly fish and veggie laden meal and said, "Enough with the salmon with mango salsa and broccoli rabe. Can't I just get a steak and some potatoes?"

It worked for a time. I never felt better and the scans showed that the cancer kept shrinking, and shrinking, and shrinking. Then one day, about 10 months after I started treatment, the scan showed growth. I didn't stop eating well. I cook from scratch at home six nights a week and we eat as much broccoli and spinach and sweet potatoes and anti-oxident rich foods as I can find recipes, but I continued eating well because I felt better when I choose well, not because I thought it would cure me.

The same is true with yoga. About four years ago I was in the best shape of my life. I discovered yoga and I loved it - still do. I was training for two 3-Day events, and when I wasn't walking I was at yoga class. I felt strong and I felt for sure I would beat this disease because I was "in the best shape of my life." And then one day, I got a phone call. They saw a new spot.

I'm not saying that this is hopeless. I most certainly am not asking you to stop exercising or eating right, but I am asking you all to change your perspective and your focus. In this very modern society in which we live, we believe that everything is within our grasp. Everything is under our control. It is very scary to think that maybe, perhaps, we have less control over our lives than we would like to think.

I saw a news report this morning that said going to church increases your risk for cardiovascular disease. How ridiculous a news report! Enough! Enough! Enough! Who was paid to investigate that? Why are we spending money on this wasteful research? Our news reports are so full of mixed messages! Instead of focusing on the cause, can we please focus on the cure?

I'm doing my best. I can do better. But I did not cause this. Can you make that your mantra?

Yes, I should have boozed less in college, but I can't turn back time. Agonizing over every decision I made will only waste precious time. Instead, I'm looking toward the future. I'm looking toward next Tuesday, which is the day I finish this Xeloda regimen and get a glorious week off from the painful drugs. That week I can't wait to head to yoga, take a long walk, and maybe wear a pair of pumps.
I beg all of you to do the same: stop feeling guilty, stop beating yourself up. Learn to give it up to God, and focus on doing your very best.

God grant me the serenity
to accept the things I cannot change;
courage to change the things I can;
and wisdom to know the difference.


Living one day at a time;
Enjoying one moment at a time;
Accepting hardships as the pathway to peace;
Taking, as He did, this sinful world
as it is, not as I would have it;
Trusting that He will make all things right
if I surrender to His Will;

That I may be reasonably happy in this life
and supremely happy with Him
Forever in the next.
Amen.
--Reinhold Niebuhr

Sunday, January 9, 2011

Scan Results

I knew something was wrong when my doctor came in and noticed my haircut. She was thrilled with the cut, but seemed uncomfortable gushing. She wanted to set a tone for the meeting and my smiling face and desire to be young, happy, and looking forward to a new year was something she was about to crush.

"We have good news and bad news."

My stomach sank, not to my toes, but all the way down the nine floors into the hospital lobby. Mamma grabbed my hand and clutched so hard it hurt, but I didn't dare pull away.

My latest scans showed that the tumors in my liver were stable. Not shrinking, but we were given the gift of stable. That was the good news.

The bad news was two-fold. The scans picked up on a new tumor: a dark spot in a lymph node in my abdomen, behind my liver, next to the celiac artery. Also, my tumor markers had increased markedly. Tumor markers, for my readers in the non-cancer world, are substances that cancer cells produce that can be measured in a blood test. When there is an increase in these substances in my blood, it is an indication of increased cancer cells in my body.

This new tumor and my tumor marker levels meant that I had stopped responding to the TDM1. I was removed from the clinical trial. I can no longer receive my precious silver bullet. Somewhere in the distance as I stared blankly out the 9th floor window, I heard a heavy door slamming shut. I could see my "case" being added to the clinical trial outcomes. My seven months before "disease progression," dragging down the drug's success. My performance dragging down every other patients' average.

I pictured somewhere, perhaps in another room in this very hospital, another metastatic patient was hugging her husband with joy, not fear, as she learned that there is a newly open spot on the TDM1 clinical trial. I probably know this patient. A dark part of me was struggling with my burning jealousy.

My doctor paused to let this news sink in before weighing in with her opinion.

"Bridget, we are disappointed. We are very disappointed. I know everyone in this room hoped that you would be on TDM1 longer, but you have to realize that, from a clinical perspective, this trial was a success. You are in a better place vis a vis your liver now than you were in May. Your liver lesions shrunk 22%. This is a success, and tumors in your lymph nodes, while hearing that is certainly scary, those are not vital organs. Better the lymph node than the liver or another vital organ. We are disappointed, but I am not worried about you. OK?"

I know my doctor is right. I find comfort in her words, and I relish her confidence. My doctor has confidence in me and in my chances.

But I also struggle with other facts. With every drug that is taken away, with every drug removed from my "arsenal," I get closer to running out. I am scared. I am angry at myself for not doing better. Was it something I ate? Too much red meat? Too much red wine? Too much stress? Late nights? Not enough exercise?

Over the past few days, as I have digested this news, I have felt like a spurned lover. I am recovering from a horrible break up. I thought TDM1 was "The One." I had visions of babies and suburban homes and years of happiness. When I was sent home on Wednesday without my scheduled infusion, I cried. I felt hit in the gut. I felt like a woman feels when she stares desperately at the phone and begs it to ring. When she picks up to make sure there's a dial tone. When she calls and hangs up without leaving a message and then yells at herself. Why can't I have him? I miss him! He was perfect! It all seemed to be going so well! What happened?

Just like with a bad breakup  I have to learn, "It's not you, it's me." There was nothing I could have done to prevent this. My cancer simply figured out TDM1's weakness too quickly. It found a detour to continue along its path of destruction. My cancer has some sort of as-yet undiscovered personality trait that makes TDM1 less than ideal.

And, just like my single girlfriends everywhere, I have to take a deep breath and say, "On to the next!"

Although I've been on 11 different drugs since 2005, and that might not seem "early" in the cancer journey, my doctor assures me I was actually able to grab a spot on this TDM1 clinical trial a little "earlier" than the other patients. Unlike many members of the trial who had exhausted all other standard therapies, I still have, according to Doc, many standard therapies still available to try. So now, we will try a standard therapy first approved by the FDA in 2007, the targeted therapy Tykerb with the chemotherapy Xeloda. 

In 2007, a clinical trial found that Tykerb plus Xeloda given to HER2+ metastatic patients who had progressed on other treatment regimens, gave patients 27 weeks without disease progression versus 18 weeks for Xeloda alone. While 8 months without another progression is certainly not a cure, some patients on Xeloda and Tykerb did see their cancers disappear and have been on the drug for several years. The 8 months is an average. We are entering an age of individualized treatment for breast cancer, my treatment over the last six years has certainly been individualized, and I am hoping to be one of those 'no evidence of disease' recipients of this drug cocktail. I am hoping that this combo will be "The One" for me.

My new drug regimen is all pills. I no longer have to visit the infusion room, which is fantastic, but also feels a little funny. I've gone to infusion every three weeks for the past six years. I feel like my nurses should have some sort of going away party. I know every receptionist, nurse, and clinical assistant. I know their kids' names. I know their upcoming wedding dates. Infusion was a social occasion for me, and those nurses answered a lot of my questions and laid to rest a lot of my concerns. They brought me warm blankets and sandwiches and drinks. They took care of me. They were caregivers. Missing infusion also feels a little like a break up. I know that this could be a great thing; it will just take some getting used to.

Instead of monthly infusions, I will be taking 11 pills every day. Talk about picking your poison! I've already started taking the Tykerb and I'm feeling....funny. I have problems with nausea and I just don't feel quite right, but I figure I can handle funny. We shall see what the Xeloda brings.

How am I doing? I am still digesting this news. I am torn. I have dual personalities here. I feel yet again like I am trying desperately to hold onto my life, grasping at straws, and I am concerned about the continued bad news we've been receiving over the past two years, but cancer can wreak havoc on my body, but it cannot take my soul.

If I've learned nothing in this cancer journey, I've learned that every cancer has a personality. My cancer has multiple personalities: when it dies, it dies quickly, but when it grows, it grows just as fast. This beast struck fear in my heart this week. In just nine weeks the news turned from "shrinking, shrinking, shrinking!" to growing. For cancer to turn on a dime, for a whole new tumor to appear in nine weeks....
This beast doesn't just die and stay dead. It has got a hold on my body and it will not go quietly into that dark night.

We have more dancing in the kitchen to do!
Regardless of cancer's intentions, I am adamant that I will continue to live the life I have made for myself. I will witness my best friend walking down the aisle. I will visit the beach with Mamma and Company this summer. I will write a book. Big Man and I are season ticket holders to our local theater and I am seeing every single show and having a pre-theater dinner to boot, even if I do feel a little 'funny.' Big Man and I want to take a trip to Wimbledon some summer soon, he's a tennis player whose never been to London, one of my favorite cities in the world that I can't wait to share with the man I love.

Let me be clear, though. We do not have a bucket list! I don't like the phrase bucket list. I might be aware and prepared for death, but I am certainly not racing toward the finish line while checking things off. Instead, I see the plans I've made as physical evidence of my fight. The battlefield is at the tissue level down in my belly, but I find symbolism from my actions every day.

As I'm swallowing the last five pills of my day, I smile with the realization that this is a physical act. "Take That!" I smile picturing the cancer cells running for the hills as the pill slowly dissolves. Like roaches scattering when you turn on a light. In the same way, if I were to get on a plane for London tomorrow, I would look out the window and say, "Not today, Cancer. Today, I am living!" After getting home from a fantastic party or double date, I think to myself as I kiss Big Man goodnight, "I am alive today."

I feel like, when the end comes, I'll know it. I have seen my grandmothers grow old. Dying from cancer is not like falling over from a heart attack or getting hit by a bus. It is a slow progression like the progression of old age. You slow down. Your plans get a little smaller and closer to home.

Hiking in the White Mountains this summer, crossing the finish line of the 3-Day this fall, planning babies and houses with Big Man at Christmas, yoga classes, dramatic hair cuts, I have very broad and ever broadening horizons. I have big plans.

This cancer might scare me, but I am going to stand my ground.

The Big Man and I went to church together today and left at peace with this news. At peace, but still clinging to one another. We can't seem to hold each other close enough, even while in church. Brushing elbows turns into me slipping my arm through his elbow and Big Man pulling me close. Brushing fingers turns into hand holding. One hand turns to both hands intertwined.

I laid my head on Big Man's shoulder today as Father John talked about the Feast of the Baptism of Our Lord. Father John argued that, while the babies who are welcomed into our church every weekend will certainly not remember their baptism, baptism is the most important sacrament. Symbolically, it is during baptism when God enters our world and makes His mark on our souls. We are His adopted children. He does not give us our eye or hair color, but He has given us all of our best qualities.

God gave me the Big Man
My strength and fortitude, my gift of gab. Big Man's ability to make me laugh when I feel instead like crying, Big Man's kind eyes and even kinder heart.  Those are the gifts we symbolically received at our baptisms. Those very qualities that get us through cancer and help us to actually grow with it. We don't remember baptism, but our souls remember.

God didn't give me cancer, but He gave me the tools I need to beat it and to carry on.

So, here we go, carrying on!

Wednesday, November 24, 2010

My Blog of Thanks Giving

I am in the hospital today. I am hooked up to an IV right now getting an infusion of my TDM1. I've been here for 3 hours, but I am hoping I can wrap it up within the hour so I don't have to rush to the airport. That's right, I am truly the greatest multi-tasker in America. I am writing a blog post, while getting my chemo, before heading to the airport for Thanksgiving. Take that Martha Stewart!

After seven months, I now have this TDM1 down to a science. I can set my watch to the moment the side effects kick in. I usually can steal about two hours post-infusion. Once I hit 2 hours, my eyes start to feel heavy. My head hurts. Every little movement takes a little more effort. I'll need a bed. The flight to Baltimore is an hour and a half, so I should be safe in my mom's arms by the time the side effects get too unbearable...if my flight is on time.

While sitting at chemo for several hours, I've found a lot of time to reflect on my year and to reflect on my many blessings. This Thanksgiving, while I have so much to be thankful for, most especially my TDM1 miracle, I am instead choosing to focus on just one. I am thankful this year for my ability to savor the moment.

Last Thanksgiving, I was unable to savor anything. Last Thanksgiving, I was just 5 days post double mastectomy. I had left the hospital just 2 days before. I could barely lift my head off the pillow and was pale, tired, and in pain. My lovely in-laws came to the house with a complete Thanksgiving meal that they brought all the way to Boston from Syracuse, NY. They didn't want me to "miss" Thanksgiving. But last year, even though I had turkey, I missed Thanksgiving. Because at the end of the day, this holiday is not about turkey, stuffing, or cranberry sauce. This holiday is about taking a collective deep breath, reflecting on all of our blessings, and enjoying family and friends. I was not in any shape last year to enjoy myself or my family.

Norman Rockwell got it right!
Thank you, God, for giving me another Thanksgiving. Thank you, God, for giving me this opportunity to savor my life, my friends, and my family. Thank you, God, for allowing me this second chance, I promise that this does not go unnoticed. This year, I will take the time to savor the moment. As one of my favorite theologians, Father James Martin, SJ, said when discussing Thanksgiving:

"Savoring is an antidote to our increasingly rushed lives. We live in a busy world, with an emphasis on speed, efficiency and productivity, and we often find ourselves always moving on to the next task at hand. Life becomes an endless series of tasks, and our day becomes a compendium of to-do lists. We become "human doings" instead of "human beings." Savoring slows us down....(In prayer) we pause to enjoy what has happened. It's a deepening of our gratitude to God, and reveals the hidden joys of our days."

 Thanksgiving used to be a blip on my radar, but now that I am older and oh-so-much wiser, Thanksgiving is my favorite holiday of the year. I know there are no gifts. I know there seems to be no "purpose" beyond just taking a day off, but life isn't about gifts and life shouldn't always be "for" something.  I think we all need a breather and some real quality time more than any gift. We all need to savor the "hidden joys of our days." Ideally we would give thanks every day, but thank goodness we do it at least once a year.

There are so many little things for which we should give thanks, and these little joys are often overshadowed by the big stuff.  How beautiful is a a baby's smile as they wake from a nap? Or the reflection of a morning sunrise on the skyscrapers downtown? How did we manage to miss the joy that can be found in the simple, but beautiful habit of a kiss goodnight? Give thanks for the smile from a stranger as they hold the door. This Thanksgiving, try to be thankful for the little things that are so abundant and so often overlooked.

I am thankful that I am not on painkillers. I am thankful that this year I am not overwhelmed emotionally with fear and anxiety. This Thanksgiving, I can appreciate the smell of a fire in the fireplace, the sights, sounds and smells of a family gathering. I can recall childhood memories without any tinge of sadness, only fondness. I can enjoy the company of new family members, like my sister-in-law and her family, and look forward to making new holiday traditions as our families grow.

Last year I was crushed by all the sorrow and anxiety that a cancer recurrence brings. This year I am thankful for freedom from that.

I hope that all of you are blessed enough to enjoy the luxury of a moment of peace. Please take advantage of that moment and appreciate it's glory. The rush of Christmas will be here all too soon and we need to ready our souls for it!

Friday, June 4, 2010

Milestones

TGIF! Today is a huge day for me. Well, actually, yesterday was a huge day for me, but the Big Man and I plan on celebrating tonight. He is taking me to see "The Great American Trailer Park Musical." I don't know what to expect, but whatever it is it sounds fabulous!

No, it is not my birthday. No, it is not my wedding anniversary. No, we did not get that puppy I want, although Big Man, if you're reading this, if you come home with a puppy tonight then you will automatically win every argument for the next five years!

Today is my "Cancer-versary". It has officially been five years since my breast cancer diagnosis! I am entering my sixth year of survivorship today! I am now officially on the winning side of that 20% statistic that I think about every second of every day. My goodness, gracious how far I have come in the past five years! I get a little bit shaky just thinking about where I was on June 3, 2005.

I was standing in line at Starbucks. I had graduated two weeks before.  I was bright eyed and bushy tailed. The greatest worry that I had was what to wear to my first day of work. I had just spent some time shopping on Newbury Street for cute shirts to go under my boring black suit jacket. I needed a coffee because I had been sadly unsuccessful.

Everything I tried on suddenly seemed so "juvenile". I suddenly felt the urge to shop at Anne Taylor or Talbots. I bought my first ever pair of shoes from Naturalizer. In college, I had never left hip, cafe-and boutique-filled Newbury Street, but post-college, I had the urge to drive out to visit a large suburban mall.

I hoped that ordering a skinny, double-shot caramel macchiato might wake me up from this real world induced fashion coma.

That is a long winded way of saying, I was a totally typical college student. I did not have a care in the world, but if you asked me I am sure I would say that I was suffering some sort of major crisis.





My phone rang. It was my mother.

Momma asked me where I was. I told her Starbucks. Without taking a breath, I started into my big thoughts on the joys of sensible Naturalizer pumps. She clearly wasn't listening. Whatever she had on her mind she was going to say and there was no stopping her.  She interrupted my Naturalizer monologue. She never told me, "Honey, you should probably sit down" or "Why don't you call me back when you get home", or even, "Go into the bathroom where it is quiet and you can talk privately."

No, no. Instead, while standing in line at Starbucks behind a young mother with a MacLaren stroller and several Burberry and Petit Bateau shopping bags, my mother told me I had breast cancer.

I hung up on her saying, "Listen, I just can't deal with this right now."

Now, five years later, I can deal with absolutely anything and everything.

This time five years ago, I was in my brand new Volkswagen Jetta, a graduation gift from my proud parents, driving eight hours home from Boston to Baltimore with my mom. I had, for some reason, packed only three outfits and a bathing suit. Who knows why I thought I needed a bathing suit for chemo. I had quit my first job before I had even started and instead of living with my best girlfriends, I was in the process of moving back in with my parents.

On the long, Batan Death March that was my ride to chemo, I was having a conversation with my oldest brother about why I should or should not tell my college friends about my diagnosis.

"Bridge, this whole cancer thing is going to be really quick. Just get this chapter behind you, and you'll want to go back to normal. If you tell everyone, you'll never be able to go back to normal. Bump in the road, Bridge, bump in the road."

"Dude, Bro, I'm going to lose my hair. How am I going to explain that one?"

Silence.

And just like that, my life was forever changed. Now, I tell my story to anyone who will listen.

Five years ago, my boyfriend of six months came to my parent's home for only the second time. He held my hand as my mother's hairdresser shaved my head.  Here I am sporting my new look next to my dubious younger brother.



Five years ago, the GI Jane look worked for a bit, but then my hair started actually falling out. It came out in big chunks. The Big Man actually left a hand print on the back of my head after watching a movie at one point. The Big Man was both mortified and feeling incredibly guilty. So I quickly invested in an amazing wig.



Looks like I got the soccer mom look I had been hoping for on Newbury Street!

Now, five years later, that brave young man who held my hand as I shaved my head is now my husband and my hair is long and fabulous.





The past five years have been a long and painful few years. Nothing has gone as I expected, but the greatest lessons of my young but eventful life haven't been learned in the college classroom; they were learned in the hospital room. So here is what I have learned up to this point. These thoughts are the legacy from my first five years:

Your parents are your best friends. Contrary to what many of you might imagine, they will not be here forever and their presence in your lives is a gift. Let go of any petty drama or family arguments. If caring for your ailing mother is grating on your last nerve, when you have the knee jerk reaction to speak sharply or get exasperated, instead take a deep breath and give a hug instead. Your parents are the only people on this earth who know you better than you know yourselves.
The best thing that ever happened me was moving in with my parents after graduation. I did not just live upstairs. I cooked dinner with them every night, my dad and I went on dates, I got to know my mom as a friend and not a mother. I learned about their first jobs and their graduate school experiences. I learned to turn to them for good and sound advice, and to actually listen to their advice rather than thinking I know it all. We became the best friends we always should have been for the first 21 years of my life because we found ourselves in the unhappy position where we were all clinging to each other like survivors to a life raft. Please, do me a favor and become best friends with your parents simply because you are lucky enough to realize how precious they are!
I’ve also learned to stop spending my time trying to plan my whole life and setting certain goals to attain. Do not measure yourself based on the accomplishments of your peers. Life is too short to wish it away.  Reflect on all that you have accomplished as opposed to planning for the next accomplishment. Focus on tonight rather than planning for tomorrow. Turn off your phone, computer, tv.....Instead, let go and enjoy where you are in this very special moment. I know I will really enjoy "The Great American Trailer Park Musical" this evening. What are you doing tonight? Whatever it is, put your heart and soul into it!
 When I visited a doctor and he ran his hands through his hair and said, “I just don’t know what to do with you.” At that moment, I was forced to take stock of my life.
I task all of you to spend some time today, in my honor, taking stock of your lives. Don’t take stock of your career goals or material possessions. Take a look at your character and at your relationships.  Take a look at the friends around you, because at the end of your lives, your relationships are what endure even after you are gone. Your relationships and your character are what matter and they are all that matter.

I have spent the past five years intensely focused on the relationships with the people I love. It has been the best five years of my life. I am looking forward to the next five.

Thursday, April 22, 2010

Relativity

This post is going to be difficult to explain.

The most difficult part of my journey to understand is the gray area. In life, we all strive for black and white. We like people to be either good or bad. We believe in right and wrong. We force people to choose sides. Perhaps one of the most difficult obstacles to overcome when faced with illness and death is the idea that bad things happen to good people. This fact challenges everything we logical human beings believe.

Life is full of gray. Bad people can sometimes act with justice. Good people do things with which we don't agree. We are conflicted. We don't know who to believe. Bad things happen to good people.

My latest scan results are a huge example of relativity.

I am always waiting for the other shoe to drop. Even after my doctors told me the scans looked good and no new drugs were needed, while my mother and husband and friends were celebrating and popping champagne, I was still "Debbie Downer". We don't know what will happen next. We still need to worry about my heart. Come on, guys, we're in it for the long haul.

Everything with my scans is relative. My scan results are not just one page. They are about four pages long. In each place where they say things are clear, they also discuss all of the centimeter and millimeter sized areas of "concern" or "suspicion" that have not changed but are still being watched.

For the past five years we have watched my liver because, when I was first diagnosed, the doctors saw a 3 centimeter spot that appeared to be cancer there. After 6 months of chemo, the spot in my liver disappeared. Then, six months later, the spot returned, but it was super small (less than 1 cm) and it stayed small. Well this past scan, the doctors saw a new spot in my liver. That makes two spots "of concern" in my liver.

This second spot was also super small. It was not cause for concern. But still....there were two spots "of concern" and the doctors wanted to discuss this. They wanted to "review it." We were told not to worry, and we didn't, but perhaps we should have.

Which brings us to last week. Last week, I got an unexpected phone call from my doctor. This tiny, insignificant spot somehow took my world and flipped everything upside down. The doctors wanted to biopsy my liver.

All of a sudden, in a space where we thought we had black and white, good and bad, clear scans, free time, health in the midst of illness, suddenly a shade of gray peeked in.

The Family suddenly rallied and circled the wagons. Plans were made. Flights were booked.

This liver biopsy is no small feat. The liver is dangerously close to the lungs. Although the biopsy needle is deep, I have to remain awake during the procedure. Tomorrow, at 6am, I will be wheeled into an operating room, but will not be put to sleep. I need to stay awake. I need to hold my breath each time the biopsy needle enters my body to make sure it does not strike the lungs.

This sucks.

I am having a biopsy of my liver tomorrow morning, Friday, April 23rd. I have been under the knife before, but it's always been my breasts, or my lymphnodes, or my ovaries.

The liver is a vital organ.

I am, uncharacteristically, nervous.

I have not even considered the results. My mind can't go there. I am just scared for tomorrow. My doctors say we won't know the results until Wednesday. I hope the results are negative. They have to be. My mind can't dwell on that yet. My mind is too full.

That is where all of you come in:
Please say a prayer. My Big Girl Pants simply aren't big enough right now. I can't wrap my head around this. While I am focusing on the surgery tomorrow, will all of you pray for me? Pray that this new spot is not cancer. Pray that God will give me a break. Pray that my husband and I can enjoy this  summer cancer-free. I am tired. I need a cancer vacation, a cancer-cation.

Tuesday, April 13, 2010

Spring Has Sprung!

Last week, I got out of the car in the pouring rain and saw a glorious sight. The tree I parked underneath, which I initially cursed because it was dripping all over my head as I struggled with groceries, instead suddenly became a sign of hope. There, on that bare tree, were thousands of teeny tiny little pink buds. So easy to miss, yet such a glorious symbol. Every year around this time, the world starts getting a little bit louder. I have been hearing birds each morning outside my window, and I can almost hear the sound of the flower buds bursting through the soil in our back garden.

This morning, those very same birds put a little spring in my step as I got out of bed. I opened the blinds and smiled at the sight of my newly planted window boxes with happy little yellow and purple pansies blooming. I admired my newly flowering tulips as I sipped my coffee in the backyard and, then, as I opened my Outlook calendar, the spring in my step turned into a verifiable leap of happiness. Today is my final inflation!

That's right, people, spring has sprung here in Boston....and so have.... my boobs!

The Girls are growing! Just in time for bikini season, the body that was Bridget is back and better than ever. I no longer just need Big Girl pants, I now also need Big Girl Bras! Now I should hold my joy back a bit, there's still a long way to go in this process, but I did want to provide everyone with a boob update.

Probably one of the hardest things about having a double mastectomy, especially at the ripe old age of 26, is that when you tell people you are having "a double mastectomy and reconstruction" they assume that you wake up with new boobs. Far from it, my friends. I've had to work for these here little ladies. It's been slow and hard and painful.


Even though I had been dealing with scars on my breasts for five years before I ever had my double mastectomy,  and even though for five years I was taking hormone therapy that took my once C cup boobs and shrunk them down to a generous A, even though I had worked in breast cancer and seen mastectomy scars both in person and online, and while I was on some level afraid of all that my boobs had done to threaten my life, nothing can prepare you for that moment when you see your very own mastectomy scars for the first time.

Granted, my surgeon did an amazing job. Honestly, if there were a Heisman Trophy for mastectomy surgery, my doc would be a shoe in, but the sense of loss was unexpectedly overwhelming. It hit me in the gut...hard. I know in my heart I made the right decision, and since I've had the surgery, I've slept better than I have in years. I know I have done everything that I can do to keep this cancer at bay, but there are certain things with a double mastectomy that you can't prepare for. For example, in addition to the scars across your chest, you lose all feeling from your belly button to your collar bone. That is heartbreaking, and it serves as an everyday reminder of all that you have lost.

The grief I felt was particularly difficult over the past six months when I would try to resume my normal life. Behaving like a normal 26 year old is incredibly important to me. I will leave the chemo chair and go to a birthday party. I vividly remember leaving one of the most difficult appointments of my life where a doctor gave me some bad test results, and heading directly to a cocktail party. I could have canceled, but I figured, I don't know how much time I have left. I most certainly will not spend what precious time remains - be it 5 more nights or 5,000 more nights- in bed feeling sorry for myself.

Manicures, pedicures, shopping for the perfect dress or shoe, getting dressed up and being told you look great even though you just left the hospital, those moments have kept me hopeful and alive. Then, after the mastectomy, I didn't fit into any of my shirts. I felt ugly. I felt ugly, and no amount of make up was going to hide that.

Also, contrary to what the name of the procedure "double mastectomy with reconstruction" implies, I didn't wake up with boobs after my mastectomy. Instead, I woke up with expanders in my chest, empty balloons that will one day create boobs. A lot of my friends didn't understand that, at least not until they saw me.

Over the past six months, I have visited my plastic surgeon once a month and he has slowly stretched my skin and inflated those balloons in my chest. We have slowly recreated boobs. The process has been painfully slow, not physically painful, just mentally painful. I liken it to when you are growing out your hair- you just don't think it will ever happen.

My first inflation, I was scared about pain so when I got home from the plastic surgeon and surveyed the damage in the mirror, I wasn't bothered too too much. I was able to quell my disappointment at the fact that my chest was still just as concave as when I started that morning. But the next month, after the second inflation, when I still left the office feeling like a 12 year old boy, I started getting a little antsy.

I say I felt like a 12 year old boy in all seriousness. It was snowing that day, not fun Christmas snow but slushy, rainy, brown snow. I was wearing a gray newsboy kind of hat with a cute brim on the front. Kind of like what old men in Ireland wear. Except, when I arrived home after visiting my plastic surgeon's office that day, I made the mistake of surveying his handiwork in the mirror whilst wearing that very same cute gray hat. Instead of boobs, I saw pectoral muscles.

Instead of taking a deep breath like a sane person and realizing these are a work in progress, I saw my gray hat wearing, flat-chested body and saw myself as, for real, a 12 year old newsboy. Cue the breakdown.

 
But that was February. That was snow. Today is April. All of a sudden, out of nowhere, my boobs have bloomed. One day, I looked down as my doctor was slowly inserting the saline in my chest and I started to actually see boobs! Which brings us to my post today. It has happened! The Girls are back and better than ever! Today is a glorious day!

I still have to have two more major surgeries to finish my boobs, but today I just wanted to reflect with all of you:

Even though I should know this by now, life is a journey. Whenever you are having a bad day, take a deep breath and realize that tomorrow will be better. Spring will come. The sun will shine. And some day soon, you will have boobs.

Tuesday, March 30, 2010

Celebrations!

Put the big girl pants away for now; they aren't needed this week. Instead, everyone raise a glass and toast my good health! Yesterday I saw my doctor and she told me that my scan results came back. There is no evidence of any new cancer. I have been given a clean bill of health!

I will be getting my next set of scans three months from now, sometime in July, which means I get to party it up and have a fabulous spring and early summer.

I'll talk more in future postings about how I have learned to live a full life in three month increments in between scans, but today is all about celebrating.

I have truly been given a new lease on life! Life is good today.


Tonight I am taking off my big girl pants and putting on my party pants. Momma, the Big Man and I are going out for a celebratory dinner. I invite all of you to join us in celebration. Thank you for your prayers! They worked!

Saturday, March 27, 2010

Inspiration

Ok Everyone,

As if scan time wasn't inspiration enough for me, I just received word of a 28 year old beautiful young spirit who was diagnosed with Stage 4 breast cancer. Allison is getting married on May 8th.

What is going on with this world????

I know my scans will be good. Let's send all the good vibes we have gotten from dancing and loving life Allison's way. http://www.facebook.com/group.php?gid=401096972787&ref=nf

Also, if you have not yet gotten involved in the fight against breast cancer, either with a Susan G. Komen Race for the Cure, a 3-Day for the Cure,  or as my younger cousin at Dennison University did a "Bench Press for the Cure", get involved now. To do so, visit www.Komen.org. It can be as big or as little as you would like but this is an issue that affects us all. We all have mothers. We all have grandmothers. We all have aunts. We all have sisters. We all have daughters. Enough is enough now.

Friday, March 26, 2010

Rainy Friday

This weekend is shaping up to be a Big Girl Pants kind of weekend, and this weekend is one of the reasons I started this blog. Today I will be heading in for my first set of scans since October. Scans are at the heart of the metastatic breast cancer journey. The fact that I need scans every three months is what it means to not have a cure. My doctors do the best that they can. My doctors are the best in this field. As one of my favorites put it, "we carpet bombed you" with chemo. We do the most aggressive surgery. We consider all options. And then, we wait and we watch.

The hardest part of scans is not having my morning coffee. As soon as I get out of that tunnel I make a beeline for Starbucks! I have to starve myself for 4 hours before the scan. The other annoying part is the sheer time I must devote. I have to arrive 90 minutes before my actual appointment time. I've never understood why they don't just schedule the scan for the hour when I have to arrive, but I'm not in health care. There must be some bureaucratic explanation.

When I arrive 90 minutes early, I am given a lovely little cocktail of Crystal Light and Barium. They are so nice as to ask my preference- Iced Tea or Fruit Punch. I've tried Barium with any number of things and unless its a stiff alcoholic drink strong enough to overpower the metallic taste of the medicine, it is no difference. I sit there for 90 minutes and drink three whole bottles of this stuff intended to coat my insides with "contrast". The Barium tastes like a mixture of metal and dirty feet. It's not so offensive as to make you get sick, but there is a gag reflex.

Now you may recall, I was diagnosed as a senior in college. While some may think that is incredibly unfair, I actually see that timing as a gift from God. Why you may ask? Well...I bring my college drinking skills to the table at scan time!

While all the other old ladies are sipping their contrast with straws, I take a deep breath and throw that baby back. The nurses tell me my nauseousness after the scan is over would be better if I sipped, but I'm young enough to still have my eyes on the prize. I'm 26, I'm allowed to throw caution to the wind when it comes to thinking about the end results of my actions. And so I chug. I want to go to Party City one day and find a pink beer bong and bring it with me to my next appointment. I can picture it now, I am going to be going down on one knee in my gorgeous hospital robe holding the beer bong up high and downing that Crystal Light in two seconds. Then I'll teach the rest of the waiting room!

After 90 minutes of waiting, you would expect the actual scan to be a big deal, but it is actually like that roller coaster ride at the amusement park. You wait hours in line and then the experience is way underwhelming and only lasts for .3 seconds. I have timed the CT scan, and it is never more than 10 minutes long.

But then the real waiting begins.

At the beginning of my cancer journey, when I first moved to Boston in 2006 and began going to Dana Farber, I would spend a whole day at the hospital. I had my scan in the morning, break for lunch and then go see the doctor for results in the afternoon. But then one time, the results came back bad. I had probably only been in Boston for 3 months. My hair was just sprouting. I was joyfully cavalier that I had beaten it. This cancer thing was just one year of my life. Just one horrible year. And then, the scans. I came to the results appointment alone. That was the last time I ever spent scan-time alone.

Since my journey has been so unpredictable and outside of the usual realm of cancer patients, my doctors tend to get creative with my treatment plan. Many doctors weigh in on statistics and treatment options and then my doctor and I get together and usually end up with a plan that is some where in the middle of the whole spectrum. I really enjoy being a partner in my care and knowing all of the options and all of the pros and cons. Well that first recurrence back in 2006, they saw the tumor in my liver grow. My doctor had just gotten the results minutes before my appointment and she came in unsure of how we would proceed. She had not had ample time to think about a game plan. It was an all around unpleasant experience because the news was bad enough but leaving without a game plan is enough to send me over a steep cliff. I must always have a game plan. Knowing that I have options keeps me sane.

So now, I get the scans on Friday and get the results on Monday. It makes for a difficult weekend, but my mom flies up to play with me and we fill our time with all sorts of fun things. This weekend, mom is teaching me to garden. We are also going to get the usual mani-pedi action. We have a list of shopping we need to get into on Newbury Street. The Big Man and I will take Mamma to our favorite restaurants. The days with mom fly by and I find that I forget about the impending appointment that could potentially take this beautiful life and throw it all to pieces again.

I don't remember until I'm sitting in the waiting room.

So everyone, enjoy this weekend for me. Get out there and take a brisk walk. Go to a party. Go to a hip restaurant. Dance. Have an amazing weekend. Love Life. Because on Monday, my life could change. I will of course update everyone as soon as I know anything.

Wednesday, March 3, 2010

How Are You Doing?

Think about the phrase "How are you doing?" Everyday, in every city across the globe, hundreds of people are asking that very question. Mothers ask sons over phone calls, girlfriends ask over a glass of wine, long lost friends connect over coffee, doctors ask patients as they give a pat down.

Sometimes, like during high school reunions, people don't really care about the answer. Instead of listening to the answer, the questioner simply prepares for when the same question comes back her way. But every once in a while this simple question is posed in such a way that makes the heart sing.

I notice a lot when people ask me how I am "doing" because I never quite know how to respond. When I answer the, "How are you doing" with the expected, "Fine, thank you and how are you?" I am almost always lying.

Five years ago, on June 3, 2005, I was diagnosed with Stage IV breast cancer.  I was 21 years old. It was two weeks after my college graduation. I had no family history of the disease.

Five years ago, some people started to dread asking me 'the question'. Five years ago, some people I have never met and may never meet started asking how I was doing. And five years ago, for the first time ever, I noticed how wonderful and liberating it can be when someone asks, "how are you doing?" and really, truly wants to know.

As my new blog title implies, life with Stage IV breast cancer requires a pair of Big Girl Pants. If you're going to enter my world, you better put on a pair of your prettiest party pants and buckle them up tight, because my answer to "How are you doing?" is always long winded!

My long winded answers are what prompted this blog. For years, I've been filling people in on my latest adventures in cancer over coffee or dinner, at cocktail parties or in mass emails. I bring people up to speed in 500 words or less. Over five years struggling with recurrences, I am slowly realizing that my life will never be normal enough to sum up over dinner. Instead, life with Stage IV cancer means that every day major news is happening. Every month a new hurdle pops up. Every week a new drug is tried. Every evening we pray.

Sharing my story over dinner, over coffee, at weddings, is unfair for my friends and family and it is a disservice to the huge hurdles that I overcome every single day. I plan to use this blog to share those day to day struggles.

I plan to update this blog everyday, or at least once a week, with reflections on where I've been, updates on where I'm headed, and general thoughts about life and about facing down death.

In an ideal world, people will actually read this and share it as well. I am also giving birth to this blog because I want to raise awareness about living life with breast cancer. Not beating it, not surviving it, not closing that door, but truly, happily, sadly, thoroughly and completely living with it.

I joke sometimes about being scary. I really am not joking.

My story scares people, especially fellow cancer patients. I am the worst case scenario.

I was diagnosed way late. By the time someone sent me for a mammogram five years ago, the cancer had traveled from my breast to my liver. One doctor gave me a 16% chance of celebrating my 30th birthday. Over the past five years, I have had three recurrences and 5 surgeries. I have been on nine different types of drugs. My cancer just won't quit. The doctors can sometimes be quite grim about my "prognosis"

But I am living well. I am living fully. I am happy. I am one of the happiest people I know. I just got married in August (best wedding ever!!) and some days I call my husband in the middle of the day to just thank him for the amazing life that we have made together. I created a song that I sing (way off tune!) while cooking dinner about how much I love my little life. I think these facts can help people, even though my situation might scare you.

It is this happiness that keeps me motivated when life isn't very happy. This day to day happiness makes me a fighter.

So let's kick off this journey by sharing one of my most favorite-est pictures ever. This is me with Stage IV cancer.


Do I look sick to you?

Does it look like I might feel sorry for myself?

Now I'm off to a doctor's appointment and will update everyone shortly! I hope there will be someone reading.